Well, I tell ya, that new blog of mine, http://imfamousgivemeakidney.blogspot.com is taking off. So far, 4 famous people have logged in and added their famousosity to the mix. The kidneys will be rolling in any day now...any day now...any day... hey people! get those kidneys on the way right now. You're not really using them, are you? Well, ok...maybe you are. But you've probably got a spare that you could...um, spare, right?
Ok, now, I really need to think up a way of preserving all those kidneys that are going to come in. That could be problematic. I only pick up my snail mail about every 10-14 days. Hmmm, and if you saw my backyard, you'd know how challenged I am in taking care of igloos and other coolers. I don't think it's a good idea for me to receive the donated kidneys for others. But hey, if you're donating one to me, we'll work out some special delivery options.
What's been going on in the nocturnal dialysis center? I'm not getting enough sleep, but what else is new? Did I tell you about the janitor that knocks your chair while you're sleeping? He's kinda the "Terminator w/a mop." And then there's all the beeping and buzzing that goes along with dialysis machines. Oh, and a couple of snorers...but I can't be too bitchy about that because I snore when I sleep on my back.
I can't help wondering though, if there would be fewer nocturnal patients needing oxygen during their treatments, if they were allowed to sleep in a different position-- other than on their backs. You see, I think some of the snoring could be cut by being able to change positions...and that less snoring would mean less oxygen needed. But that's just my crazy hypothesis.
In any case, I wear my noise canceling headphones to keep the noise level down so I can sleep. But I really think I'm going to have to get out of my chair and strangle that janitor if he wakes me up again with his mopping!
Got a call from the social worker the other day to check in with me-- since I missed my appointment with her due to technical difficulties (I'll blog about that later). She wanted to know how I felt about a recent personnel change. They didn't exactly give me advance notice that a new nurse would be coming in-- but hey, I've already bitched about that enough and have gotten to the point to where I don't give a flying fuck.
Well, that's true. I will always give a flying fuck...but well, I don't have the time or energy for much more than a flying fuckette.
Anyhoo, the new nurse seems alright. He only once tried to tuck me in-- argh! They don't know that if I wanted a tuck-in I'd want a good night kiss and a glass of milk, too. Better back off, Nursy, I can tuck myself in and I know all you really want is to get a load of my hotness in my jammies.
The nutritionist had a lapse this week-- and put a smiley face on my progress report. I don't know why these "professionals" haven't gotten a clue that most of us dialysis patients don't want to be treated like kindergarteners. I want "just the facts, ma'am." When I have to share my lab results with another professional, I'd rather them not see that I've done a "great job!!!11!!!!111!"
Bleh!
I have heard rumors about other dialysis centers considering the in-center nocturnal option. And a couple of those centers are closer than the one I visit now. I am very loyal to the doctor who runs the nocturnal study I'm currently in-- I would hate to move away from her. But-- it's a pain in the ass to drive 1.5 hours each way to get nocturnal dialysis 3 times a week. That's time I could be using for other things-- like surfing for pictures of Robert Pattinson or getting my toenails painted.
Well, I'm going to have to wrap this up since I'm writing on my lunch break. Get that, my sweet employer-- I'm blogging during my lunch break, no worries... I'm on my laptop. I'm being a good girl, for once.
Nitey nite to you...
Michelle/Treasure
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I truly dislike those stupid DaVita smiley faces or frowns from the dietitian, too. I hate being infantilized.
ReplyDeleteWhat do you want us to do? IF we just said here you go you would complain that we dont care. This is why there is a staff turnover. Can't please everyone.
ReplyDeleteOh, the contrary, I would like a lab report with no stickers. It's not an all or nothing dichotomy. And yeah, I don't mind if you just hand it over...or if you just mail it to me. I wonder if you're actually a social worker, because if you are, you seem kinda clueless.
ReplyDeleteAs far as staff turnover is concerned, I doubt isn't because I request that you leave off the stickers, hehehe. I'm sure it has much more to do with money and hours and workload. And, I would imagine that leaving off the stickers could ease the workload quite a bit. *squee*
You have a lot of anger and I'm really glad you blog about it. I'm going to pass out blogs, including yours, to the patients I think would like it. I wish the job gave me time where I could coordinate patient meet ups with or without me present. The power of sharing your experience is extreme.
ReplyDeleteI don't do stickers but our dietican does and she is so sweet. I do get that it can feel condescending though. I think I know who to sit and talk with and who I just say "you good?" and carry on. We have to write a note that says we made contact.
Maybe let your social worker and dietican know how you feel about contact with them. It might hurt their feelings but it's your life
Anger, who me? Puh-leaze. Of course I'm angry. I have repeatedly ask that they leave off the stickers, but they sometimes forget. They are only human, afterall. Also, it's common knowledge that I blog about my dialysis experiences, so if they had forgotten that I mentioned it a half-dozen other times, they could refer to numerous posting I have online that speak to that, and other issues.
ReplyDeleteThere are some people that have expressed the same sentiments about stickers and visits from social workers and dieticians-- and guess what, they weren't patients-- but doctors, techs and nurses. One doesn't haven't to feel angry about issues like this...but it works for me, hehehe.
Do you feel you ever reach REM sleep? It sounds as if there are enough interuptions that it would be hard to reach that deep sleep that you need to refresh your body.
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